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Why Breast Cancer? For Annie

  • Jul. 13th, 2004 at 11:05 AM
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John and I moved to Anchorage the year Erin started first grade. It was a hard move; we had a great network of friends in Fairbanks that I didn't want to leave behind, a church that was more family than worship community, and an excellent private school. One of our decisions was that we would homeschool Erin for at least a few years.

People worry that homeschooled children will not be socialized and will grow up as hothouse flowers, unable to relate to people. This is a myth. With the exception of the truly whacky conspiracy theorist types, homeschoolers are the biggest bunch of community-creating organizers out there. We hadn't been in Anchorage very long before we found a homeschool group that was purposefully non-sectarian. It was chock full of little girls around Erin's age. We went ice skating every Wednesday morning and had field trips and craft activities at least a couple times a month. Just Saturday Erin was reflecting on her childhood and pronounced it "idyllic."

We had been involved for about half a year when Annie first came to the group. She brought another daughter Erin's age and two sons, the youngest of which was Amy's age and had a beautiful head full of curly hair. Amy thought Gabe was a girl for years.

Annie was about as earth mother as you can get. She ran a food co-op, ordering organic staples and produce that was shipped to her once a month and then distributed among the co-op members. She was the editor of the local newspaper in the small town of Girdwood, 35 miles south of Anchorage, where she and her family lived. She had been on the fast track to the Olympic ski team when a knee injury took her out of the running, and she had turned that intensity of focus onto raising her kids right and living as lightly on the earth as possible. Her husband was a massage therapist, she was a nurse-midwife, and they had a group of people around them that were like a corona around a shining sun of energy, bounty, grace and goodness.

She believed completely in the John Holt philosophy of homeschooling: that textbooks and formal lessons were a waste of time, and children learn best what they are curious about. Our kids attacked subjects with ferocity, and we learned much through play, through conversation, through the experience of life. We made our daughters costumes based on the colonial American Girls books, and more based on the Pilgrims. We had pilgrim-style Thanksgivings, complete with hand-carved trenchers and wooden utensils. We hiked in the woods and found fossils, then used the energy of that curiosity to explore geology and dinosaurs. We did chemistry in the kitchen and physics in the park. We spent time with, and talked to, and learned from our children.

And we weren't alone. There were about fifteen families involved with regularity in the homeschooling group. Outside of that group there were dozens of people who loved Annie and who drew inspiration from the deep font of her being. She advised, consoled, laughed with and wept for her friends. She delivered their babies and gave lactation advice at all hours and helped people decide when to stick with holistic medicines and when to get to a doctor. She was both ethereal and completely practical. She had a wicked sense of humor, no use for intolerance, and boundless love.

She was also a militant nurser. But when Gabe was three years old she came to skating one day and related how he had spooked her. Every time he started to nurse, he would burst into tears. "You're going to die, Mommy! You're gonna die before my birthday! I don't want you to die!" We agreed it was kind of creepy, but probably just a separation anxiety thing. We all laughed at our relief, though, when Gabe's birthday went by and the only noticeable change in Annie was that she was pregnant again.

She had Seanan at home, attended only by her husband. He was born in the night, while the other kids were asleep, so she hadn't even needed to call in kid-wrangling backup. He was a darling little guy, a happy and peaceful baby.

But for the first time, Annie got a breast infection on one side. Antibiotics helped for a while, then it would return. Seanan wouldn't take the breast on that side, and she pumped minimally, hoping it would dry up and get unclogged. It was chronic, and irritating.

On a Sunday morning in May as I was getting the kids ready for church, the phone rang. It was Annie. "I'm in the hospital," she said. "Can you come? I'm all alone. And they just told me...

"I have breast cancer."

The intern had told her all this while her husband was away, taking care of the kids. And then left her alone. I got there as quickly as I could. Annie had inflammatory breast cancer, a pernicious and deadly form that is hard to diagnose because it doesn't present as a tumor or lump but infects all the tissues. Breast infection is a common misdiagnosis. When it finally flares up, though, there is no missing it. Her breast was the size, shape, color and texture of a basketball. The cancer had already metastasized into liver and lungs.

I held her as she cried. "My babies! I'm not ready to die. Seanan won't even remember me." We cried together, because there was no comfort to be found.

She was there for a week, and it was clear that the doctors didn't expect her to ever leave.I knew one of the doctors, a good friend. He would not give a time frame, but told me that it was unlikely that she would respond to any treatment.

But respond she did. At the end of the week we took her home, though not before outraging a nurse by laughing hysterically at the "Chemotherapy and You" videos they had us watch - gallows humor is vital when you're staring into the abyss. We took her home and cared for her and for her kids. She lived for a year, until just past Seanan's second birthday. She recovered once from the brink of death in order to finish her goodbyes. Her husband took her to Colorado to say goodbye to the people and the mountains, and she died there.

She was 36.

Despite all the healthy living, despite her combat nursing, Annie had a timebomb inside her. The town where her father grew up was downwind of nuclear weapons testing, and there is an epidemic of inflammatory breast cancer in the daughters of the men who grew up there. All the clean living in the world could not have saved her from the poison in her DNA.

To this day, 6 years later, I still stumble on the truth that she is gone. I still cannot fathom that this vibrant, loving woman, this woman who wrapped her friends and family in glowing love, who gave so much life to others, lost hers so young.

I cannot help Annie now, but it is in her memory that I am raising money to further research. So that other children do not need to remember their mother from a distance, a photograph, the stories told by friends and family. Give if you can.








Comments

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[info]mightydoll wrote:
Jul. 13th, 2004 03:13 pm (UTC)
Wow.

That's all I've got. Just wow.

[info]zoethe wrote:
Jul. 13th, 2004 03:18 pm (UTC)
She was my hero. It's as simple as that.
[info]shannon_elaine wrote:
Jul. 13th, 2004 03:22 pm (UTC)
That was beautiful. Thanks so much for sharing it with us.

Donation made.
[info]zoethe wrote:
Jul. 13th, 2004 04:01 pm (UTC)
Thank you so very much,
[info]scarlatti wrote:
Jul. 13th, 2004 03:24 pm (UTC)
How could I *not* make a donation after that beautiful tribute?
It can't have been easy to write.
[info]zoethe wrote:
Jul. 13th, 2004 04:00 pm (UTC)
No, and it doesn't feel adequate to express who she was. But it will have to do.

Thank you.
[info]kellirose1313 wrote:
Jul. 13th, 2004 03:26 pm (UTC)
That was beautifully written and terribly sad. Atleast you got to know that wonderful woman in your lifetime and be there for her in the end.
[info]zoethe wrote:
Jul. 13th, 2004 03:30 pm (UTC)
I want everyone to know how amazing she was, I want to share her with the world. I was blessed by her.
[info]aehallh wrote:
Jul. 13th, 2004 03:27 pm (UTC)
Thank you so much for sharing that...
[info]albumlady wrote:
Jul. 13th, 2004 03:29 pm (UTC)
Dear Gini - If you read my post last night, I'm sure you understand why I've chosen your charity to donate to this year. I'd like to donate to Ferrett's as well, we'll see how payday goes!

Hugs and blessings, and THANK you hon... damn, crying again, can't seem to stop today.
[info]zoethe wrote:
Jul. 13th, 2004 03:37 pm (UTC)
I did, but didn't have time to comment. Family feuds are terrible, and foolish. I am praying for you all.
[info]call_me_harmony wrote:
Jul. 13th, 2004 03:30 pm (UTC)
Thank you for sharing this with us. It must have been painful to write.
[info]zoethe wrote:
Jul. 13th, 2004 03:38 pm (UTC)
It was. I still miss her fiercely.
[info]elfwench wrote:
Jul. 13th, 2004 03:30 pm (UTC)
{{HUGS}} I lost my mother to breast cancer, though thankfully I was on my own by the time she died, though my children really never had much chance to get to know her and that's sad. My husband [info]lord_keeper lost his grandmother and his aunt to breast cancer as well. So it is a charity near and dear to my heart, and it makes me sad that we can't afford to give at this point as we have too many other financial obligations. Hopefully next year will be a different story.
[info]zoethe wrote:
Jul. 13th, 2004 03:39 pm (UTC)
Hey, we all have times when we can give and times when we can't. I completely understand. I wouldn't mind if you pimped me for the cause, though.
(no subject) - [info]elfwench - Jul. 13th, 2004 03:44 pm (UTC) Expand
(no subject) - [info]zoethe - Jul. 13th, 2004 03:44 pm (UTC) Expand
(no subject) - [info]elfwench - Jul. 13th, 2004 04:18 pm (UTC) Expand
(no subject) - [info]zoethe - Jul. 13th, 2004 05:01 pm (UTC) Expand
(no subject) - [info]elfwench - Jul. 13th, 2004 05:04 pm (UTC) Expand
[info]lostangelumbra wrote:
Jul. 13th, 2004 03:31 pm (UTC)
Thank you for sharing, and though I don't have the money right now, I will definatly keep this charity in mind the next time I have a extra dollar or hundred to spare. Cancer has effected my life a lot in the past twelve years, killing or adding to the deaths of most of my family that have left me these past twelve years. Currently I am about $800 in the hole right now, trying to pay off a couple of credit cards that I got into trouble with. By September I will finally have all of this paid off, getting my life back on track so that my son and I can move out of my parent's house two years from now into our own home after I graduate from college. But thank you for sharing again, and best of luck in all of this.
[info]zoethe wrote:
Jul. 13th, 2004 03:40 pm (UTC)
Understood. We all have times we can give and times we can't.
[info]mysterg wrote:
Jul. 13th, 2004 03:36 pm (UTC)
Donation made, dear lady. I lost my Grandma to Colon Cancer when I was 14; I wish we could stamp it all out, forever...
[info]zoethe wrote:
Jul. 13th, 2004 03:41 pm (UTC)
Thanks, sweetie. We're looking forward to you being here with us on the night!
[info]naath wrote:
Jul. 13th, 2004 03:38 pm (UTC)
/me has given all her spare cash to ferret this time arround, but I shall remember this next time someone comes round with a tin for breast cancer charities and remember to give.
[info]zoethe wrote:
Jul. 13th, 2004 03:41 pm (UTC)
Thanks. They are both good causes.
[info]cubes wrote:
Jul. 13th, 2004 03:40 pm (UTC)
That story made me cry.

I'll make the same offer to you as to your hubby: I won't do PayPal, but I will mail a $50 check to you, or donate directly to your charity.

My doc found a lump last month and I had to go in for a mammo and then an ultrasound just to be sure. Fortunately it appears to be benign. Sitting there all alone, in a flimsy gown, with ultrasound goop all over one boob, waiting for the word is a rather vulnerable feeeling. I can only hope that, had been bad news, they'd have let me get dressed before they told me. I can also hope that your efforts will help someone come up with better, faster, cheaper, and more accurate tests and treatment.
[info]zoethe wrote:
Jul. 13th, 2004 03:44 pm (UTC)
Thanks. Whichever you feel more comfortable with - if you itemize and can take the deduction, definitely send it directly to the Foundation.

I am glad your worst fears were unrealized!
(no subject) - [info]cubes - Jul. 13th, 2004 04:29 pm (UTC) Expand
(no subject) - [info]zoethe - Jul. 13th, 2004 05:01 pm (UTC) Expand
[info]kid_lit_fan wrote:
Jul. 13th, 2004 04:10 pm (UTC)
(gives you a cyber hand-squeeze). If this eloquent testimony doesn't get donations, it's because of hearts of stone or simply nothing to give!

(((hugs, and a bit of money in a couple of days!)
[info]zoethe wrote:
Jul. 13th, 2004 05:00 pm (UTC)
Thanks. People have come forward. I appreciate it more than words can say.
[info]jmfunnyface wrote:
Jul. 13th, 2004 04:53 pm (UTC)
I wish I had money to give, but I'm recently been laid off, so money isn't really something I can give out right now, even for such a great cause.

My grandmother died of breast cancer a few months before I was born. I can imagine how her youngest child must feel. You get to hear stories about this great person that was supposed to be in your life, but it's never enough.

Good luck in your blog-athon.
[info]zoethe wrote:
Jul. 13th, 2004 05:05 pm (UTC)
Thanks. I completely understand about layoffs and tight funds.
[info]astridsdream wrote:
Jul. 13th, 2004 04:54 pm (UTC)
$5 to you, $5 to your husband, and still enough left for me to buy groceries. *nods firmly* Should be worth it. I won't get to read any of them 'til the next day, as I'll be running my first ever psychology experiment (*nervous grin*) but I'll enjoy them when I can. Thanks for doing this. And thanks for this essay about Annie. It helped me decide that I could afford to donate.
[info]zoethe wrote:
Jul. 13th, 2004 05:07 pm (UTC)
Thank you. Every bit helps.
[info]ilovenirvana wrote:
Jul. 13th, 2004 05:10 pm (UTC)
That's an absolutly beautiful story.
[info]zoethe wrote:
Jul. 13th, 2004 05:16 pm (UTC)
I wish I didn't have to tell it....
(no subject) - [info]ilovenirvana - Jul. 13th, 2004 06:08 pm (UTC) Expand
[info]apostate_96 wrote:
Jul. 13th, 2004 05:29 pm (UTC)
Jesus, what a loss...

My mom's sister has had two or three bouts with breast cancer. She's a really neat woman, who gave me a lot of guidance and support while I was an undergrad, especially the first year when she opened her home to me. I am ever so grateful she's still with us.

My father's older sister died of cancer, though I don't think it was breast cancer. I still miss her. She was outrageous and yet at the same time the person I felt I could have talked to about nearly anything and not gotten immediately judged or freaked out.

I don't have a PayPal account, but my wife does. I'm hoping we can manage to set it up that we can both donate through it. If not, I'll figure something else out...
[info]donkey_hokey wrote:
Jul. 13th, 2004 07:13 pm (UTC)
I second that (the donation part, anyway; I don't have a wife..)

Maybe I can take the credit for one of the donations and you can take the other..?

I'm not sure that it would be cool for us to donate one sum in two names.
(no subject) - [info]zoethe - Jul. 13th, 2004 07:18 pm (UTC) Expand
[info]ldygwynedd wrote:
Jul. 13th, 2004 05:35 pm (UTC)
What a wonderful story. Thank you for posting it. I will certainly donate.
[info]zoethe wrote:
Jul. 13th, 2004 05:45 pm (UTC)
Thank you.
[info]moderate_excess wrote:
Jul. 13th, 2004 06:21 pm (UTC)
As others have said, that was a beautiful and moving story. I wish I had money to send, not just now, and not just because I've been reminded.

I wonder if our families have intersected at some point? I have a brother in Bird Creek who is a well-known and respected potter. Bird Creek and Girdwood being so small and so close together, it would surprise me if he hadn't known your Annie, or possibly even you. His name is Peter Brondz. Know him? Annie sounds exactly like the sort of person in his circle of friends.
[info]zoethe wrote:
Jul. 13th, 2004 06:31 pm (UTC)
I don't know him personally, but I've seen his work. It's beautiful!

Totally understand about the money. I give cash when I can, time when I can't, and prayers when neither are avaible.
[info]batshua wrote:
Jul. 13th, 2004 06:40 pm (UTC)
*hug*

Right now my great aunt (the only direct descendant of our family matriarch) is going through chemo for her breast cancer. Fortunately hers is the slow kind, so they may be able to beat it back for a while. I try to pretend her cancer is No Big Deal, but we all know it may very well kill her.

... by any chance, have you kept up with Annie's family? This makes me wonder how they're doing.
[info]zoethe wrote:
Jul. 13th, 2004 07:08 pm (UTC)
He eventually remarried, and the last I heard from them they were doing okay. It was a rough few years, and I know the kids still miss her.
(no subject) - [info]batshua - Jul. 13th, 2004 07:16 pm (UTC) Expand
[info]zaliness wrote:
Jul. 13th, 2004 06:56 pm (UTC)
*hugs*
this made me so sad.
id give if i had a credit card, or lived in america. but as im aussie, 18, and broke, all i can do is be sad.
:(
[info]zoethe wrote:
Jul. 13th, 2004 07:09 pm (UTC)
If you get a chance to give to something over there, or do volunteer work, even for a different cause, do so. There are many worthy causes out there, and Annie believed in helping people.
(no subject) - [info]zaliness - Jul. 15th, 2004 10:31 am (UTC) Expand
(no subject) - [info]zoethe - Jul. 15th, 2004 11:58 am (UTC) Expand
(no subject) - [info]zaliness - Jul. 15th, 2004 12:15 pm (UTC) Expand
[info]morganvision wrote:
Jul. 13th, 2004 07:10 pm (UTC)
Gini, I have to say that this is the first entry of yours I have read, and it was through your husband's link that I found it. I was actually moved to tears. The area that I grew up in, Northern California, also has a higher rate of breast cancer, and nobody can really figure out why. Breast cancer has become this looming threat for all women there. There's an awareness that most people do not live with. I've had teachers who have warned us, local articles that have expounded the threats. It's terribly sad.

I absolutely intend to donate. Thank you.
[info]zoethe wrote:
Jul. 13th, 2004 07:13 pm (UTC)
It is a frightening legacy of modernity, this exponential growth of cancers.

Thank you.
[info]donkey_hokey wrote:
Jul. 13th, 2004 07:17 pm (UTC)
It sounds like it was a terrible, and great, loss.

I'm sorry.

There will be a donation, credited either to me (or my husband), but it will be from both of us.
[info]zoethe wrote:
Jul. 13th, 2004 07:18 pm (UTC)
Thank you.
[info]ruisenora wrote:
Jul. 13th, 2004 10:22 pm (UTC)
Oh my god.. *hugs* I'm here from theferrett's journal.. I lost a friend to cancer.. It was horrible.. That poor woman.. Poor you.. Her family.. *Hugs and cries*
[info]zoethe wrote:
Jul. 14th, 2004 01:25 am (UTC)
It's hard. I feel for you, too.
(no subject) - [info]ruisenora - Jul. 14th, 2004 01:26 am (UTC) Expand
[info]ysabel wrote:
Jul. 13th, 2004 10:31 pm (UTC)
Wow. *hug*

My mom is a breast cancer survivor; she had stage III estrogen-responsive cancer, and went through chemo and radiation and appears to be in remission now. There are stories there, some of which I think I've told somewhere along the line. Among other things, it's made the fact that I'm taking estrogen a lot more nerve-wracking, but dropping my dosages below what they are now just doesn't work, so I'm stuck with doing everything else I can to avoid risk (estradiol, no cycling, etc).

I'll look at stuff and see whether I can donate. We're having to tighten the belts a lot right now because Amy's art biz is not even quite breaking even yet and we just had to blow about $2k on dentist bills (and that's with insurance, sigh)...but maybe I can manage something. Hell, I've probably got some birthday money... *smile* And yes, I know you understand about tight funds and such, I just wanted to say something... It's okay, I don't need reassurance there. *hug*
[info]zoethe wrote:
Jul. 14th, 2004 01:25 am (UTC)
I know. Hugs.
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