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Zoethe

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Doing my own meme [Jul. 12th, 2009|03:39 pm]
Zoethe
I'm at that point in migraine treatment that the megs don't have me completely knocked out, but their effectiveness is just beginning to decay. This is when things like going to the bathroom, putting some protein in my body, and sitting up are possible, and Ferrett pointed out the meme I apparently started. So let me write, eyes c;psed, about migraine.

The thing that loads of [eople do not understand about migraine is that the headache itself is unpleasant for byt almost tolerable. he rest of the stuff going on in the bodu is what makes it so crippling, Chages in light, souns, even iar pressure cause spkes of pain and severe nausea, yoour eyes burn and ache, and frequently there is an ocular component that some people percieve and snapping sparks and other as rippling vision,. For me it's ripples, and the whole world can look like I'm viewing it from under water.

For me, also, once the ripply part is gone, I can read for brief periods, but onl acutal paper, not my computer or my iPjone. This makes the tedium of the ;uning in dark room very still less horrible, partioularly since reading a few pages exhauss me and I am able to fall back to sleep.

I am liucky only to edperience the fullblown version of this ell once every couple years. Fpr thpse who suffer refularly, mt heart foes out to you.

Now I have exhausted my ability to be out of bed. More drugs, more sleep. I hope this ends by morning.
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Comments:
[User Picture]From: mycorethoughts
2009-07-12 08:22 pm (UTC)
I can tell by the typos that you're still migraine-y. Hope you feel better soon!

I was diagnosed with atypical migraine. I don't get halos or auras, and I'm not particularly light or sound sensitive (unless it's extremely bright or obnoxiously loud). What I do get is a headache that mimics my sinus headaches, but don't respond to sinus meds. They get progressivly worse for about 4-6 hours, sometimes 8 hours, at which point I begin vomiting to the point of dry heaves (and just when I couldn't imagine that my head could possibly hurt any worse!). Then they begin to fade over another 4-6 hours. After that, I'm useless for the next 24 hours.

The only way they could correctly diagnose that I had migraines was because the monitor showed migraine brain-waves during the course of one of these a few years ago, after I'd gotten accepted into a migraine study. Until then, I didn't even know that migraine brain waves existed, but they have a distinct pattern, apparently.
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[User Picture]From: zoethe
2009-07-13 02:35 pm (UTC)
Mine were diagnosed about 25 years ago, and I'm pleased to say that, though I get the ocular stuff several times a year, the actual headaches are a rare occurance. This weekend's was one of the worst I've ever had, particularly for endurance. Today I still have that vaguely frail feeling, like I don't want to move my head too fast, but at least for now I can look at the computer without my stomach doing flips.
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[User Picture]From: chaosdancer
2009-07-12 08:24 pm (UTC)
My migraines are more in the acute pain area without the visual effects, and it has helped me tremendously to have someone rub my feet (when I have someone in my life willing to rub my feet). It seems to dilute the pain, somehow. Have you ever tried that?
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[User Picture]From: zoethe
2009-07-13 02:36 pm (UTC)
Have not tried that. Wish I'd seen this earlier - but of course, I couldn't really! Will try that next time. Thanks!
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[User Picture]From: ladiefare
2009-07-12 09:51 pm (UTC)

I , unfortunately, feel your pain

and discombobulation.
My favorite descriptions are that you can hear the hum of electricity through the walls and the ticking of an LED clock.
As well as the added bonus of your favorite fragrances making you nauseous.
I have not found a med yet that doesn't cause me to have a rebound in response, so I just muddle through with Ibuprofen when they assault me.
Feel better soon.
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[User Picture]From: zoethe
2009-07-13 02:38 pm (UTC)

Re: I , unfortunately, feel your pain

Exactly. Sleep is the only cure, because it makes the time pass.
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[User Picture]From: moominmuppet
2009-07-13 04:32 pm (UTC)

Re: I , unfortunately, feel your pain

That's the part that drives me nuts with mine. If I go to sleep with a little one, I wake up in with a big one. I can't sleep until I get the migraine mostly under control. It's obnoxious. On the other hand, although I get the light/sound sensitivity, and I feel vaguely queasy, I don't get actual nausea, and I don't get the severity of pain and effect that many people do. I've got mild one now, and although I'll probably go home early, I'm able to function with my monitor contrast and brightness turned all the way down. Biggest problem is thinking straight. Migraines give me brain fog like nobody's business.

On the really frustrating side, orgasm makes mine utterly head-explodey. *grrrr*

I'd say I have 'em somewhere around once every week or two, lasting between 24-72 hours.
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[User Picture]From: zoethe
2009-07-13 11:02 pm (UTC)

Re: I , unfortunately, feel your pain

Ditto on the orgasm thing. The screaming suddenly is Not Good.

I was doing okay today, but overdid it. Now owie, but not so much the nausea. Brain fog, though.
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[User Picture]From: heathrow
2009-07-12 10:26 pm (UTC)
I'm sorry you're hurting so badly. I get bad migraines every couple of weeks now, and while I'm used to it, it doesn't get much easier. :(

May this pass quickly.
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[User Picture]From: zoethe
2009-07-13 02:39 pm (UTC)
My heart goes out to you.

Today I'm at that "upright and mostly okay but really frail" phase. With, of course, court, clients, and work to do.
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[User Picture]From: daenarys
2009-07-12 11:41 pm (UTC)
I hear you on the vision being messed up, for me the start of a migraine is sections of my vision go white and then disappear entirely. If someone walks in front of that section of vision it's like they vanish for a moment. But I don't notice unless something like that happens, like my brain is trying to filter the eyes into a coherent picture.
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[User Picture]From: zoethe
2009-07-13 02:40 pm (UTC)
Yikes! I will occasionally get black spots, but mostly it's the ripply water effect.
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[User Picture]From: gkingsley
2009-07-13 01:15 am (UTC)
You have my complete sympathies - I am also a migraine sufferer. I get the sparkly aura, much like daenarys described above. When the sparkles start in the upper right corner of my vision, I know I have 30-45 minutes to get somewhere safe and comfortable, because by then I will be almost completely blind as well as nauseous and in excruciating pain. It sucks more than anything has ever sucked before, and I hope you feel better soon.
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[User Picture]From: zoethe
2009-07-13 02:41 pm (UTC)
I'm upright and have some focus today, which is good since I have to work! Thanks.
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[User Picture]From: apostate_96
2009-07-13 02:00 am (UTC)
Thanks for the fun meme; it was quite entertaining to do m'self.

I hope you get to feeling better RQS (Latin for PDQ).
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[User Picture]From: zoethe
2009-07-13 02:42 pm (UTC)
The accidental meme amused me.
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[User Picture]From: apostate_96
2009-07-14 02:55 am (UTC)
Me, too. And, these days, I'll take amusement where I can find it.
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[User Picture]From: miripanda
2009-07-13 04:29 am (UTC)
The worst migraine I ever got was when I was 13, at orchestra camp, and the music stand started to look like it had that ripple-effect screensaver bouncing around on it. I threw up, then had to walk home, still throwing up every block or so, before curling up in a dark room and shaking for the next few hours until my folks got home. Yuck. Hope yours moves along soon.
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[User Picture]From: zoethe
2009-07-13 02:43 pm (UTC)
Okay, that's bad. Poor thing.

I'm to the "frail-ok" phase. No turning head too fast, no laughing.
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[User Picture]From: candiedheart
2009-07-13 05:59 am (UTC)
I was diagnosed with severe migraines in February, and get one to two a week that last 2-3 days.
Meds are pretty worthless for me.


I really hope you feel better soon. My heart definitely goes out to you. <3
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[User Picture]From: zoethe
2009-07-13 02:49 pm (UTC)
I can't fathom how you function. I'm getting better - upright and able to look at the computer screen for brief periods. But Saturday and yesterday I was worthless.
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[User Picture]From: eendje77
2009-07-13 06:55 am (UTC)
I know people with migraines, including me with just regualar, garden variety, headaches who improved out of sight when they stopped eating wheat. Would that be something you could consider? I've gone from headaches every day to once every two months, and they've gone from every two weeks to twice a year...it might be worth a try for a month or two?
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[User Picture]From: zoethe
2009-07-13 02:51 pm (UTC)
Wow. I can't imagine life without bagels. But if i get another one of these within the next couple months, I will consider damned near anything. The infrequency of my headaches is a disincentive to such experiments, since it would be hard to tell!
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